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On Saturday, 17 October 2026, people around the world will unite for World HSP Day — raising awareness of Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). 

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There is currently no treatment that can stop the progression of HSP or PLS.

More awareness, international collaboration and scientific research are urgently needed.

World HSP Day brings together patients, families, researchers, healthcare professionals and organisations worldwide. One community. One shared goal: to move research forward and bring better treatments closer.

Because when it comes to creating change, every step counts.

Join the movement. Share your story. Support research.

Join the movement. Share your story. Support research.

Share your story.
Take a step. 

On 17 October, we invite everyone living with HSP or PLS to help make these conditions visible.

Share a short video or photo on social media showing how you move — walking independently, with mobility aids or using a wheelchair. Show the world what living with HSP or PLS means to you.

Add this message: 

“Dear everyone, for me, walking is a major challenge. For you, helping is just a small step. Will you join the fight against HSP?

Visit worldhspday.com and make a donation. Every euro goes directly to research.”

Use #hspplsworldawarenessday #hspandpls #eurohspfederation #life4hsp #research and tag your national HSP association, EUROHSP and Life4HSP.

One story creates awareness.
Together, our stories create a movement. 

Upcoming events

Join the International Webinar

Saturday, 17 October 2026
Host: Alex Sijm Alex Sijm
Host: Emmelie Zipson Emmelie Zipson
Join the webinar

Join patients, neurologists, researchers, volunteers and HSP organisations from around the world for an inspiring international webinar hosted by Alex Sijm.

Every 30 minutes, new guests will share scientific developments, personal perspectives and international initiatives.

The first two hours will be mainly in Dutch with English subtitles. The final two hours will be in English with Dutch subtitles. Questions can be asked through the live chat.

Watch. Learn. Ask. Connect. Every step towards greater understanding matters. 

International HSP Congress Amsterdam

Saturday, 16 – 18 October 2026

From 16–18 October 2026, nearly 40 representatives of HSP organisations from around the world will meet in Amsterdam for the International HSP Congress.
Organised by Life4HSP, the congress brings together knowledge, experience and new ideas around research, fundraising, patient participation and international collaboration.

Through presentations, workshops and interactive sessions, organisations, researchers and healthcare professionals will work together to move research forward and accelerate progress for everyone affected by HSP and PLS. 

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© 2026 World HSP Day

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